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Moore, a 7-year-old with Fanconi Anemia, received a tremendous amount of community support as family and friends came together to raise money for the family during this trying time. Moore received the transplant Oct. 24 at the University of Minnesota Children’s Hospital at Fairview.
According to the family’s Web site, www.caringbridge.org/visit/dylanmoore, Moore’s health has taken a turn for the worse, and doctors at press time had no definitive answers as to why.
“During morning rounds, they took away all of the medications by mouth that they could and changed them to IV because Dylan can’t keep them down. They ordered more tests. Dr. Wagner was in town today so he stopped by. He thought it would be a good idea to do an intestinal scope biopsy to check for graft versus host,” said Moore’s mother, Betsy.
Betsy said that Moore was having problems passing water, and has diarrhea, and doctors are testing him for various conditions. “I know they are testing for mono, fifths disease, CMV virus, and the adenovirus.
Hopefully, we will have test results back soon although they only run some of these tests once a week. I, politely, of course, asked that they put a rush on it. They said they would see what they could do. They did say that mono is more likely to cause the enlarged lymph nodes that showed up on the CT scan. That’s the one that they may have to cut back on his engraftment medication to treat.”
Betsy said that while she and the family waits to find answers they need prayers to help get them through. “We really need some answers. His fragile body can’t take much more of this. His immune system is so fragile right now, this could destroy everything that we have worked so hard for. Although these viruses are pretty common, and aren’t usually life threatening for healthy people, they can be a really big deal for a patient that has been through a bone marrow transplant ... I guess as I pray for God to take care of all of this, I should also pray that God gives me patience, cause I am running out at this point.”
For daily updates and photos on Moore’s condition, log onto www.caringbridge.org/visit/dylanmoore.






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