Dylan Moore family looking for rainbows

by Della Batts, Daily Herald Staff Writer
Published/Last Modified on Friday, March 13, 2009 2:54 PM EDT

FAIRVIEW, MINN. — Just when many people were breathing a sigh of relief and hoping young Dylan Moore was on the road to recovery following a bone marrow transplant, complications rose.




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The 8-year-old has seen more than his share of sickness and pain, but he keeps fighting strong, his family reports.

Moore’s mother, Besty writes in her journal that whenever she feels hopeless, she looks for rainbows. Yesterday  she once again found herself looking.

The child was born with Fanconi Anemia. He required a bone marrow transplant in October, and was expected to stay in the University of Minnesota Children’s Hospital at Fairview for 100 days but numerous complications coupled with the standard problems associated with recovery have kept him there. Moore was allowed out of the hospital around day 122 moving to a nearby recovery home. Then he developed liver complications and a fever that required his return to the hospital

Now, Moore has developed further complications, suffering sever stomach pains and vomiting blood, making doctors suspect he was rejecting his transplant. He was taken to surgery to investigate the bleeding, where they found severe irritation in the stomach, but they cannot explain the bleeding in the colon. Doctors have not the possibility of transplant rejection, but hope that it was due to complications with his feeding tube.

“After a very tense and frustrating morning, I accompanied Dylan to the operating room against the doctor’s wishes. He was very nervous, so I stayed beside him until he was asleep. We were concerned that he was being intubated during the surgery. We were also concerned that his risk of bleeding was high. I was looking out the window for a rainbow and Peanut (a family member) was thumbing through a magazine. Guess what he found. You got it. A rainbow!”

Copyright © 2010 Roanoke Daily Herald

Comments

    Anonymous Friend wrote on Mar 26, 2009 6:11 PM:

    " Although I'm sure the family appreciates everyone's prayers and good thoughts, I would hope that whoever is writing these stories gets Betsy's permission before quoting her. This is a deeply painful journey this family is on. I'm not quite so sure that they want their words posted to everyone...those who want to keep a check on Dylan can subscribe to their website.
    I find it interesting that updates are only printed in the Herald when things are not going well for Dylan. It is almost as though you are drawing attention to the misery instead of rejoicing in the good times and good reports they get.
    I just ask that you please get permission from the family before printing any more of this family's trials. (And by the way, Peanut is Dylan's DAD!) "

    VA wrote on Mar 22, 2009 10:24 PM:

    " You know, everyone should just sign up for the daily update....the Herald has Peanut listed as a family member....its his FATHER for crying out loud!!! This is not the first time the Herald has screwed up....its obvious you do not know the whole story, and you should really STOP quoting Betseys journal. "

    mattie watts wrote on Mar 22, 2009 11:09 AM:

    " i would like to say we are praying for dylan and the whole family if any of us in warren county can do anything for you or your family let us know "

    Bigbaby wrote on Mar 18, 2009 4:35 PM:

    " We will keep him our prayers. God is a good god.He didnt bring dylan this far and leave me . He got alot of plans for him. PRAY N FAST. May god bless u all n Dylan "

    mc wrote on Mar 17, 2009 11:32 AM:

    " keep looking for rainbows,

    My prayer are with you! "

    Jo wrote on Mar 15, 2009 8:09 PM:

    " We continue to keep your entire family in our Prayers! "

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